I am asking all of you to read this. I just learned about this from Regina's blog.
I know this family. I have taught Peyton in his religious education classes and vacation Bible school. This boy is the sweetest, kindest boy. He is so creative and he was always eager to volunteer to help.
I know, like us, a lot of you don't have a lot of money, so I am asking that you pass this on to others, so we can find ways to help this family. If you can give, please do, there is a list of locations and more which will take donations for their family.
Of their three children, one has for sure been diagnosed, they think the middle child has it too, and the youngest is being tested.
Oregon Boy, 10, Suffering From Deadly Childhood 'Alzheimer's'
This is from their website:
Unfortunately, Zavesca is a new drug, and the cost for one 100 mg pill is
$100. Our child(ren) will be taking up to three 100 mg. pills each day,
which is over $9000 per month for one child. Currently, our insurance has
agreed to cover half of the cost for a one year period, after which time, they
will review the progress of the drug, and either approve or deny further
There are times when news can hit you so hard you are nothing but overwhelmed by emotion. These are really good people, really good kids. Please, pray... pray hard.
St. Gerard, who, like the Savior, loved children so tenderly and by your prayers freed many from disease and even death, listen to us who are pleading for these sick children. We thank God for the great gift of these children and ask Him to restore them to health if such be His holy will. This favor, we beg of you through your love for all children and mothers. Amen.